The Bhaktaphur Mothers Group is a self-help group caring for children with cerebral palsy. It is part of the umbrella organisation, Cerebral Palsy Nepal, which is Nepal’s only non-governmental and non-profit organization dedicated to supporting people with cerebral palsy and their families. It is an associate organization member of the International Cerebral Palsy Society, London. Despite the excellent progress they have made, they are only scratching the surface of what remains a chronic, under-resourced problem in Nepal.
Cerebral Palsy (CP) is a neurological disorder that involves damage to the brain such that many sufferers can’t walk, speak, and have problems such as learning disabilities, seizures, epilepsy, incontinence and speech issues. It’s been called “Nepal’s hidden catastrophe”: their plight is worsened by extreme poverty, lack of education, poor health and beliefs such as it being a divine punishment. The brain injury occurs before birth, during birth, or within the first few years of a child’s life. Cerebral palsy is non-progressive (it does not get worse), not genetic, and is incurable. It is a disease rather than a condition. Whilst cerebral palsy has no cure, medical and therapeutic interventions can significantly enhance the quality of life for those affected. Those interventions occurring in early life, when the child is still developing, are most effective, and that’s why it’s important that cerebral palsy is diagnosed early.
How We’re Helping
New Futures Nepal is providing “top-up” funding to assist with new therapies and resources, changes in accommodation, resource provision, and increasing client numbers (i.e. a “client” being a mother or family wanting to attend this support centre with their child that has cerebral palsy). This is a self-funding group many of whose “clients” are unable to pay in full for the service.
Where : Nepal
Who is Benefiting : 20-30 children and their families
Start Date : 2012
End Date : Ongoing
This Year’s Forecast : £3,000